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I was diagnosed with early onset dementia and alzhimers. Is there safe guards I can put it up so I don't screw or kill anyone? Like who do I contact about being denied to own a gun?

I don't think ii would ever hurt anyone. But in nursing if have seen severe cases. I just want to make sure their are safeguards for me in place. It scares the shit out of me.

38 comments
  • Oh hi I'm a psychiatric nurse!

    Most important: Pick the three people you trust most in the world, put them in order of who you want making decisions for you the most (you also need to consider who will be the most level-headed & put your needs before their own emotions), then talk to your doctor about what paperwork you need to sign for that. Then talk to those people at length about how you want to die and what would make you feel the safest and happiest day-to-day until it happens. Think about what routines have brought you peace in your life, what things you do for fun / relaxation, what kind of music you like to listen to, etc.

    If you're up to it, I also highly recommend Wellness Recovery Action Planning. It's more designed for people who are more likely to recover, but it'll give you a template to go off to communicate your day to day needs in a written format for your legal decision makers and healthcare professionals to make you feel safe and comfortable as you progress through these next few stages. It'll also have some spaces for you to mention any specific triggers (a lot of the time we find out someone has PTSD from sexual assault after a trip to the bathroom unexpectedly turns into a cage match and it would be nice to get a heads up instead). And if you do this have a special section just for music; it's the part of your brain that's likely to keep working the longest. Make two playlists, one to dance / have fun to, and one to relax / sleep to.

    I wouldn't fuss too much on the gun thing unless you already have one / have been used to having one for most of your life. If you were never a gun person before you're unlikely to randomly just go out and buy one.

    Good luck and I really hope you're able to find trustworthy people to make decisions for you because without them to actually carry out your wishes, literally anything else you decide on now is completely moot.

  • I'm very sorry to hear that. What is your family support situation look like? That's one of the most important factors.

  • So sorry to hear. I have worked with many cases similar to yours. First things first, as most have said you need to find someone you trust to be you power of attorney. Depending on where you live in the world this can look different so I would consult with a expert to make sure you are doing it correctly.

    This disease is scary because you slowly lose yourself. Depending on how it progresses you may eventually forget everyone you know. You may maintain long term memories but likely your short term memory will be completely shot.

    This means you will often be on a short loop of 5-15 minutes as it progresses. Quality of life is highly dependent on very patient, kind, and understanding caregivers. It extremely exhaustive taking care of a person on this short loop.

    Hearing the same story thousands of times. Constantly correcting behavior and a lot of supervision is needed. Often your emotional state is completely dependent on those around you. If everyone else is happy, you will be.

    The good news is you may have a long time before this happens. Enjoy life and prepare for the worst. They could find some new treatment soon so you are not without hope. Definitely time for a bucket list.

38 comments