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Posts 4
Comments 11
chronic pain and CRPS

  • Thanks! I've let my physical therapist know what's going on and hopefully she can help!

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    chronic pain and CRPS

  • Thanks! It really is. It feels (dare I say) validiating. I've spent so many years being told "we don't know" and one pain doctor even called me drug seeking. So I'm SO happy to start hopefully getting relief.

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    chronic pain and CRPS

  • Thanks sorry it's taken me awhile to respond. Its been arough few days. I can relate a lot to your post. My doctors have all said structuraly you're fine we don't understand! I've been struggling to do anything except lay in bed. I have a home health aide that comes 10 hours a day 7 days a week so that's amazingly helpful. I hope you get some relief too.

    • Disability and Accessibility @beehaw.org malvidx @lemmy.sdf.org

    chronic pain and CRPS

    I fell down an escelator in 2015 and fractured my ankle in 4 places. Had 8 surgeries, a spinal cord stimulator, and tried ketamine infusions (had a REALLY bad reaction) and ended up having my leg amputated below the knee. Then this past December I had a total knee replacement on the other leg. I've been having severe pain in that leg and they can't figure out why. Finally it looks like I may have CRPS. I have every single symptom. It feels really good to finally have a name for the hell I've been going through for so long. I just needed to write it out. I'm basically home/bed bound except for medical appointments. I'm just tired.

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    General support post

  • I get it. No pressure here. Just solidarity.

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    is the community not active?

  • I get that! Been struggling here as well.

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    is the community not active?

  • Cool thanks! Also I went from 'pending' to 'joined' finally!

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    is the community not active?

  • Gotcha thanks! It seems like a good community from what I've read.

    • Disability and Accessibility @beehaw.org malvidx @lemmy.sdf.org

    is the community not active?

    It says my approval is still pending and I'm not seeing new posts?

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    Introduction

  • Hi! I'm a 45 year old amputee. Had an accident in 2015 and after a buttload of surgeries lost my leg. Had a traumatic knee replacement this past December and am in constant pain. Getting a morphine pump soon. I also have a paralyzed neurogenic bladder from my accident. I have an awesome cat and partner.

    • Disability and Accessibility @beehaw.org malvidx @lemmy.sdf.org

    anyone got a pain pump?

    I was approved for a morphine pain pump. Went through the psych eval etc. I'm waiting to be scheduled for my trial. Has anyone had one and what's your experience? Thanks!

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    Glad to be here!

  • Thanks! Sent them an email.

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    Glad to be here!

  • Thanks I sent an email. I may just have to do it gain.

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    Glad to be here!

  • Thank you so much! I think I get it. Hahah. I wasn't sure which community to post to.

    • sdfpubnix @lemmy.sdf.org malvidx @lemmy.sdf.org

    Glad to be here!

    Hey all! I was a casual reddit user and wanted to explore a different route. I'm just your typical geek. I recently de-googled my pixel 6a because I was bored. I'm an avid Linux user. I've had a sdf account for quite some time and am getting back to using it more (also I paid for an upgrade but it never happened. What's up with that?) Anyway good to be here!

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