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  • I ride a bike and fast so I am not physically disabled. I don't look disabled. I have full mobility. I can mask a lot of the pain for short appearances. No one knows the years with a lack of sleep; how fast I fall apart when sitting up or standing; the countless times I've gone days not able to do anything because I carried a grocery bag or reached for a dish; the sharp pain that lasts for weeks if I turn my head left; what real pain is like when it is a constant noise that never fades; when the volume of the white noise of pain is so loud it is all you can hear, when even your internal thoughts fade; constantly feeling a need to consciously try to relax the tension over my entire body that builds in clinching muscles and grinding teeth; to wake up every day feeling exhausted; to watch everyone around me progress in life while in limbo unable to move on; the days and years fading together; the fear of a terrible helpless future both within and without; the indignity; helplessness; vanity of life and purpose; forever morning one's own loss through the torment of prolonged time; profound loneliness countered by embarrassing moments when isolation leads to acting unlike one's true self; the haunting regrets; the unfounded accusations of a mental cause and not a symptom; the lack of competent medical professionals that figure out hard problems without excuses. There are so so many things

11 comments