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Disabled Community Megathread from November 17, 2025 to November 30, 2025

I have always been fond of music, especially when I'm feeling down. Now, I don't think there's enough popular songs about disability and how we struggle each day. But I stumbled across a song the other day that, while it's not about disability, I've been listening to quite often when I feel like I failed somehow. When all that's happening is really just me struggling and making it through another day, for better or for worse, I like to remind myself that I am perfectly incomplete, but I am good the way I am. I hope that maybe it helps you too.


Friendly reminder to please use ::: spoiler spoiler tags and content warnings [cw] Hexbear CoC ::: for sensitive content that falls under Hexbear's Code of Conduct. You can find the spoiler tag here:

After clicking it, just substitute the second "spoiler" with your content warning and the three underscores ( ___ ) with your sensitive content, and you're all done.


As always, we ask that in order to participate in the weekly megathread, one self-identifies as some form of disabled, which is broadly defined in the community sidebar:

"Disability" is an umbrella term which encompasses physical disabilities, emotional/psychiatric disabilities, neurodivergence, intellectual/developmental disabilities, sensory disabilities, invisible disabilities, and more. You do not have to have an official diagnosis to consider yourself disabled.

Mask up, love one another, and stay alive for one more week.

179 comments
  • i swear almost all of my migraines these days come from getting too close to cishet men. if they used 1/10th as much body wash as they do body spray my life would be so much better; as it is like 60% of the cis men i encounter reek so heavily of axe or whatever that i can't get within 30 feet of them without it ruining my entire day

    this complaint brought to you by this exact situation happening twenty minutes ago

    • Agreed, if you leave a cloud of scent after yourself it's too much! But it is so common for people to douse themselves in the stuff.

    • IME, everyone, male and female, wears an unholy amount of perfume. It's so bad I have to carry migraine tablets with me everywhere I go.

    • I'm getting violent flashbacks to some of these clouds I walked into, and I don't even get headaches or migraines from it. Sorry you had so many reeky people around you, I hope you won't encounter any more anytime soon

  • I don't know how to have a conversation that leaves me socially satisfied at the end and I have no idea why or what I can do better

    • Sorry it's causing you distress trying to communicate, comrade. It's not an easy task trying to express yourself and make connections, and being on the spectrum makes it so much more difficult to navigate. It's okay to not be sure of what you want or need. Sometimes those needs end up changing over time as we grow and learn, so it's not a bad thing to be figuring things out. Hope you have a better day today.

    • Feel hugged sweetie, that's a horrible feeling

      Is there something you're looking for in particular? Like "wholesome chitchat" or "warm, kind conversation"? Or is it more specific like "I need X to listen so I can get something off my chest"?

      • thank you

        I don't know, its hard to explain. I guess a lot of the times I talk with someone it feels short, like I wanted to talk longer. But I don't necessarily always know exactly what I want to talk about, or keep it going, and I also don't know if I want to just ramble/talk at someone either. A lot of the time its a kind of generic wanting to talk about trans related things but I don't really know what to say. And even that outside of that a lot of the times it just feels like, "cut short", even if the conversation reached a "natural" place to stop.

  • I started using orca, the screen reader, to test how things are for blind people, and I think there are improvements that can be made on hexbear, both on technical level, but also on a user level. Can we try to add an alt to the image in the mega body.


    Noting down things:

    • On posts, the comment icon/svg says the post id for some reason?
    • The context links both say "Show context".
    • Profile pictures just say "image".
    • The expand post button is just "button".
    • The share button (three connected dots) is just "button".
    • The moderation history buttons in the more dropdown is under the same

      <li>

      , so the screen reader can say there are 4 items, when there is (in practice) 5. But also, the

      <hr>

      is in it's own

      <li>

      so there can be sometimes correctly (but for the wrong reason) 6 items.
    • It says the •. But not the pen so it's not clear when a post is edited.
    • Thumbnails just say "expand here"

    Testing area:

    Yeah... it of course says "show"


    This user is suspected of being a cat. Please report any suspicious behavior

    • I fully agree with you, there's a lot we can do better. What do you want me to add? Really not good with formatting, but I will try my best.

      Oh no :/ I mean, I simply copied the one from the trans mega, maybe I should at least change the name of the image? But that doesn't explain the ID thing. Maybe something to ask the admins?

      Adding to the last part, we might be able to change that word to what actually happens, namely "removing the blur", again, with help from someone who's more tech savvy than I am.


      I'm noting suspicious behavior, I think this poster may be a cat.

      • Right now is simply says "Show [...] clickable", so it's like this:

        for sensitive content that falls under Hexbear's Code of Conduct. You can find the spoiler tag here:
        Show [...] clickable.
        After clicking it, just substitute the second "spoiler" with your content warning and the three underscores ( ___ ) with your sensitive content, and you're all done.

        And while we can't do anything about it saying Show, we should include something like "an arrow pointing to the spoiler button" ("spoiler button" is what it narrates when I highlight the button)

        The "nothing things down" is for myself, I'm talking about the small comment icon on the front page, so don't worry about it. If it's something users can do better I'll point it out like I did with the image alt.


        This user is suspected of being a cat. Please report any suspicious behavior.

  • I got a letter from the private hospital, it seems they have accepted me for the consultation. So that's something. On the downside my GP surgery recently changed their appointment booking system to an online thing that is so difficult to use I haven't been able to use it. They never answer their phone lines, so it means if I need an appointment I have to actually go there first thing in the morning, get in the queue and hope there are some appointments left by the time I get to the front of the queue, which usually there aren't. Stupid, stupid system.

    In fact so many other people are struggling to use this online booking system that the surgery have started running classes in how to use it! Stupidest thing I've ever heard. So many people need these classes that there is a waiting list. I'm on the waiting list and god knows how long it will take. I am honestly starting to think they make it so hard to get an appointment purposely to deter people.

    • A class to use a booking system?? With a wait list? That's ridiculous. Glad to hear the private hospital will take you, that is a positive. Hopefully they can get you in soon. And you're right, the system is definitely working against the people who need it most.

  • i forgot how to give pushback to my doctor, i used to be so good at this but i'm so shit at advocating for myself now, he's not taking my disabilities seriously and i have to get him to fill out important paperwork about them soon

  • people seem deranged these days. I don't know what happened to make everyond so fucking weird. I am so tired of everything. it feels like america would rather i be dead. I don't want to be dead, but only because i dont want to add to the suffering of people i love. So so tired.

    • America seems to want a lot of people dead, but as a state, it always has wanted people dead for profit. I'm sorry you're suffering from it as well. Know that we appreciate you here and are glad that you're around

      • Thanks, i got to spend a little time with my nephews and their chaotic energy always help pull me out of the tailspin. I really appreciate this comm, you all have much better responses than a general forum or an overly concerned but ignorant loved one. Thank you.

    • People always want the disabled dead. Even in Utopia, Thomas More said if someone is ill/disabled with no hope of a cure, they should unalive themselves to prevent them from being a burden to others.

  • I have a stim I've done forever, and it is very soothing, but it also keeps me from doing things and is really frustrating sometimes. Like really you'd rather sit here and stim instead of do the fun thing in front of you?? This has been an issue forever too..

    • Oh no :( Reminds me of some coping mechanisms that helped when things were dire but aren't helping if you're trying to heal. This is a tough spot to be in

  • I generally do not think of myself as unique, but there must be some particular way my neurodiversity effects me or something that makes me suffer way more then other people given the same circumstances. I see people, even people in worse circumstances, who are just happier and not as effected as I am and there just has to be something there. Like what about me means I feel this horrible when others don't.

    • Do you think it's neurodiversity that causes this? I experience the same thing, and whenever I complain about my circumstances in real life people just brush me off and minimise whatever I'm going through. I thought maybe I just struggle more because I feel so unwell all the time and am in chronic pain, or maybe a tough childhood has affected me mentally. But neurodiversity causing it is an interesting thought.

    • First things first, you are unique, but not simply because of your neurodiversity. Everyone is unique, and so are you. As to your suffering, I am sorry you are struggling so much. What I can tell you is that I've spoken to a handful of people who are severely restricted through their disability, and they told me that at some point, it is easier to just pretend to be happy than to give into the suffering. At some point, at least for some of them, the happiness was no longer play-pretend. Just like how smiling more can make you happier through simple body chemistry.

      I can't tell you if they just wanted to console me, but I can tell you that I share your outlook. It does seem like this to me too most of the time, and I always struggle with that feeling. You are not alone, and I appreciate you sharing that feeling with us. Makes me feel a little bit more seen too

      • I guess I don't know how to explain it, but like I try not to think of myself as so different from everyone on earth, I'm not sure how to explain it. Yea, idk, I fake it a lot especially irl. Still waiting for pretending to be easier- I don't know, it feels like masking and is draining for me.

        Thank you

        Really glad someone understands.

  • I got my gynaecology referral letter today, I had to phone the number to make an appointment. There was an echo on the line, everything I said was being echoed back to me and oh my god, I can't believe how awful my voice sounds. I didn't know it was that bad. When I'm speaking I hear my voice as being quite deep and accentless, but echoed back it sounded like a high pitched child's voice with a cockney accent. I don't even live in London so why do I sound like a cockney?

    Anyway apparently NHS waiting lists are so long now that the local private hospital is taking NHS patients. However the private hospital is allowed to pick and choose which patients it will take. If I can go to the private hospital I will get seen quicker, get my own private room, better food etc. So they've put me forward for that but I will have to wait and see if the private hospital accepts me. If not I'll have to be redirected back through the NHS waiting list.

    • I hate hearing my own voice too, it always make me cringe and sounds an octave higher than I imagine. I'm sure it's not as bad as we perceive it, though.

      That'd be nice to get 'picked' at the nicer facility! Writing that felt weird...healthcare with sports terminology feels so dystopian. Either way, hope you hear back soon and it gets you on your way to getting the fibroid issues treated.

      • It is dystopian, especially the fact that the private hospital can just pick and choose whichever NHS patients they will take. But thank you, I hope it gets sorted soon too. They've made me a provisional appointment for new years eve for the consultation but the private hospital can decide against me and cancel it if they want.

    • I really hope they'll take care of you and don't just shove you off onto another waiting list. Keeping my fingers crossed for you

      As to how hearing your voice made you feel - your voice will always sound deeper to you than it does to others. You're closer to it, and you hear the vibration from inside the body as much as the sound that leaves your mouth. That does not mean you have a high pitched voice, but an echo or a recording of your voice will always sound higher pitched. Don't worry about it, I don't think people think your voice is a high pitched child's voice. As to the accent, have you maybe listened to a podcast or watched a show or something similar that had a lot of people speak with a cockney accent? That might influence your speech patterns. Long story short, there's nothing wrong with having a cockney accent or a higher pitched voice than you thought you had.

      • Thanks, I really hope I get to go to the private hospital as well, I actually had my thyroidectomy done there (because my employer at the time had given the employees private healthcare benefits) and it was so much nicer than the NHS one. That's probably the only reason my thyroid cancer got diagnosed actually, I'd been begging the NHS for help with my symptoms for 3.5 years at that point and they just kept fobbing me off. Then my employer gave us private health insurance and I told my GP I had private health insurance now and he sent me there for some proper tests.

        I actually lived in London as a child, decades ago but moved to Devon as a schoolchild in the 90s. But that was so long ago and I don't sound cockney in my head at all, I had no idea I still sound like that. In fact it was so long ago I mostly forget I started life in London, it seems like another lifetime ago. I just sounded like such a child too, it was embarrassing.

  • I have toothache and trying to get a dentist appointment in this country is insane. I had an NHS dentist years ago but like many other dentists they went private as the government weren't paying them enough. There aren't any NHS dentists around here taking patients. So if you can't get a dentist but you have a dental problem you need to call the NHS helpline and after loads of hassle you can finally be sent to the stabilisation clinic - where people without NHS dentists who are entitled to free dental care can have an emergency dental treatment. However you have to prove your eligibility, by getting a letter from the NHS low income scheme. This takes a load of hassle and they said I probably won't get the proof of eligibility until some time next week. Once I have the proof then I can go to all the hassle of trying to get an appointment with the stability clinic, meanwhile the toothache is getting worse by then day. Like everything else in this shithole country, it's a pointlessly stressful and time consuming effort. Why is everything like this? Nothing can ever just be fast or easy.

    • It's completely alien to me how a dentist appointment could have this many obstacles. Holy shit, this is not okay. Do you have some pain killers for the time being so it doesn't become completely unbearable?

  • That was a fun listen, the lyrics were definitely relatable. I've been on a Sleep Token kick lately, can't get enough of them. Thanks for the new mega

    • You're welcome sweetie

      I checked them out, it's a wild combination of early 00s goth/punk/emo stuff mixed with metal and some pop-choir-elements (at least the song I first listened to). A wild combination that is fun to listen to!

179 comments